1. You are responsible for your own health care. It's your body nobody else's. If you aren't sure about something or want a second opinion then get it. Your medical team should support such a decision. If they don't support you go find a new doctor or medical practitioner.

2. ask lots of questions. Be educated about your illness. Receiving a diagnosis of a future filled with chronic care, chronic illness and no chance for recovery is life altering no doubt, but it is not life ending.

3. Take time to do what you love, take time to surround yourself with people you love and create a supportive network. If your medical team is not part of this network go find another one. Never be afraid to query your doctor and challenge them on therapies if you feel uncertain.

4. Always, always, always ask for information if you are not sure what you are being told. Finally, if your doctor is rushed, and who isn't, insist they spend more time with you if you have questions. I often left my doctor's office feeling as if I had been brushed off for more important cases and felt very frustrated. Don't forget, like you, your doctor is also a human being with feelings and issues and if you have a chronic illness you will be in a relationship together for a long time. Work together to create a comfortable visit each and every time you go to office.

Resource Box: Janet Auty-Carlisle’s mission is to coach people into being best they can be and to help them live best life possible. She speaks passionately on overcoming hurdles everyone faces in life, and learning to transition through many changes that we all experience. She believes that everyone can achieve greatness: They just have to believe in themselves. Her website is www.tobeyourbest.net.